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Campaigning For Cancer and Rare Diseases South Africa are pleased to bring you the upcoming Patient Huddle: Capacity Building Exchange Series. 

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This series of capacity building engagements seeks to bring together regional and local patient advocacy leaders and nascent patient groups, Patient User Network members and advocates for a program that will allow them to build their understanding and knowledge of the Non-profit organisation framework, share best practices, exchange ideas and get to grips with the potential role they can play as patient advocates. 

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The series provides invaluable opportunities to advance partnerships with more established groups and advocate from different disease areas. The programs of the series will include knowledge sharing sessions focused on developing knowledge and skills within nascent patient groups, thought-provoking panel discussions with KOLs, as well as curriculum geared toward advocacy training, and including a format of Roundtable/Workshop discussions with all key stakeholders including local and international speakers. 

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The Huddle Exchange Series

  • Sat, 21 Sept
    Awareness Days
    21 Sept 2024, 00:00 – 23:50
    Awareness Days
    Usher Syndrome Awareness Day is observed on the third Saturday of September and falls on September 21 this year. This rare genetic disease has long gone unrecognized, but many are working hard to bring it to light. Usher syndrome affects eyesight, hearing, and mobility
  • Wed, 25 Sept
    Awareness Days
    25 Sept 2024, 00:00 – 23:50
    Awareness Days
    The respiratory conditions have a significant societal and economic cost, with the burden negatively affecting healthcare systems, impacting the lives of patients and their families, lowering productivity, and widening the gap in life expectancy between the poorest and wealthiest. A significant prop
  • Sun, 29 Sept
    Awareness Days
    29 Sept 2024, 00:00 – 23:50
    Awareness Days
    Every year, over 17 million people die from heart disease. As a way to fight this, the World Heart Federation created World Heart Day. It’s an event held every year on September 29.
  • Tue, 01 Oct
    Awareness Days
    01 Oct 2024, 00:00 – 23:50
    Awareness Days
    Inherited disorders according to the head of Science Retina South Africa, Claudette Medefindt cover a huge diversity of diseases that affect millions worldwide. “They can cause serious health issues. Genetic components have been implicated in cancer, heart disease, Diabetes, mental health and blin
  • Sun, 17 Nov
    Johannesburg
    17 Nov 2024, 05:00 – 17:00
    Johannesburg, Soccer City Ave, Nasrec, Johannesburg, 2147, South Africa
    Ride 97 km of traffic-free Joburg streets on your bicycle, using your mobility for the #1in15 South African affected by rare diseases. Sunday 17 November 2024, FNB Stadium, Johannesburg.
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