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Campaigning For Cancer and Rare Diseases South Africa are pleased to bring you the upcoming Patient Huddle: Capacity Building Exchange Series. 

This series of capacity building engagements seeks to bring together regional and local patient advocacy leaders and nascent patient groups, Patient User Network members and advocates for a program that will allow them to build their understanding and knowledge of the Non-profit organisation framework, share best practices, exchange ideas and get to grips with the potential role they can play as patient advocates. 

The series provides invaluable opportunities to advance partnerships with more established groups and advocate from different disease areas. The programs of the series will include knowledge sharing sessions focused on developing knowledge and skills within nascent patient groups, thought-provoking panel discussions with KOLs, as well as curriculum geared toward advocacy training, and including a format of Roundtable/Workshop discussions with all key stakeholders including local and international speakers. 

The Huddle Exchange Series

  • International Men's Day
    International Men's Day
    Wed, 19 Nov
    Online Platforms
    International Men’s Day celebrates worldwide the positive value men bring to the world, their families and communities. We highlight positive role models and raise awareness of men’s well-being. Our theme for 2025 is “Celebrating Men and Boys”.
  • World COPD Day
    World COPD Day
    Wed, 19 Nov
    Online Platforms
    World COPD Day is organized by the Global Initiative for Chronic Obstructive Lung Disease (GOLD) in collaboration with health care professionals and COPD patient groups throughout the world. Its aim is to raise awareness, share knowledge, and discuss ways to reduce the burden of COPD worldwide.
  • World Children’s Day
    World Children’s Day
    Thu, 20 Nov
    Online Platforms
    Each year to promote international togetherness, awareness among children worldwide, and improving children's welfare.
  • World Pancreatic Cancer Day
    World Pancreatic Cancer Day
    Thu, 20 Nov
    Online Platforms
    World Pancreatic Cancer Day is celebrated on the third Thursday of November each year. This day serves as a global platform for communities, organisations, and individuals to come together to raise awareness about pancreatic cancer, which is one of the deadliest forms of cancer.
  • International Survivors of Suicide Loss Day
    International Survivors of Suicide Loss Day
    Sat, 22 Nov
    Online Platforms
    International Survivors of Suicide Loss Day is an event in which survivors of suicide loss come together to find connection, understanding, and hope through their shared experience.
  • Streamlining Regulatory & Ethics Approvals
    Streamlining Regulatory & Ethics Approvals
    Tue, 25 Nov
    Zoom
    This session examines how to harmonize, simplify, and accelerate approvals for regulatory and ethics approvals across the continent. Topics include the potential for regional ethics review mechanisms, regulatory reliance models, and leveraging clinical trial networks.
  • World AIDS Day
    World AIDS Day
    Mon, 01 Dec
    Online Platforms
    World AIDS Day is observed on December 1 each year to raise awareness about HIV/AIDS, honor those who have died from the disease, and promote efforts to combat the epidemic.
  • Crohn’s and Colitis Awareness Week
    Crohn’s and Colitis Awareness Week
    Mon, 01 Dec
    Online Platforms
    Crohn’s and Colitis Awareness Week is observed from December 1 to December 7 each year, aiming to educate about these common inflammatory bowel diseases and promote understanding and support.
  • National Grief Awareness Week
    National Grief Awareness Week
    Tue, 02 Dec
    Online Platforms
    National Grief Awareness Week is observed annually from December 2nd to December 8th, aiming to raise awareness about grief and provide support for those affected by loss.
  • International Day of Persons with Disabilities
    International Day of Persons with Disabilities
    Wed, 03 Dec
    Online Platforms
    The International Day of Persons with Disabilities is observed annually on December 3rd to promote the rights and well-being of persons with disabilities and to raise awareness about their situation in society.
  • International Universal Health Coverage Day
    International Universal Health Coverage Day
    Fri, 12 Dec
    Online Platforms
    International Universal Health Coverage Day aims to raise awareness of the need for strong and resilient health systems and universal health coverage with multi-stakeholder partners.
  • The Cape Town Cycle Tour - 2026
    The Cape Town Cycle Tour - 2026
    Sun, 08 Mar
    Cape Town
    Take on the iconic Cape Town Cycle Tour with purpose by joining #Ride4Rare. Experience breathtaking coastal views and the natural beauty of Cape Town’s world-famous route, all while using your passion and athletic ability to raise awareness and funds.
  • Totalsports Two Oceans Marathon - 2026
    Totalsports Two Oceans Marathon - 2026
    Sat, 11 Apr
    Cape Town
    Total Sports Two Oceans Marathon is an opportunity to use your mobility to benefit others - our rare diseases community! Sign up today to take part in the world's most beautiful marathon.
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Physical Address

The Station, 63 Peter Place, Bryanston, Sandton, 2021

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NPO: 120-991 

NPC: 2016/071131/08 

PBO: 930060119

©2025  Rare Diseases South Africa NPC

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Rare Diseases South Africa

NPO 120-991

The Station, 63 Peter Place, Bryanston, Sandton, 2021

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

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