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Campaigning For Cancer and Rare Diseases South Africa are pleased to bring you the upcoming Patient Huddle: Capacity Building Exchange Series. 

This series of capacity building engagements seeks to bring together regional and local patient advocacy leaders and nascent patient groups, Patient User Network members and advocates for a program that will allow them to build their understanding and knowledge of the Non-profit organisation framework, share best practices, exchange ideas and get to grips with the potential role they can play as patient advocates. 

The series provides invaluable opportunities to advance partnerships with more established groups and advocate from different disease areas. The programs of the series will include knowledge sharing sessions focused on developing knowledge and skills within nascent patient groups, thought-provoking panel discussions with KOLs, as well as curriculum geared toward advocacy training, and including a format of Roundtable/Workshop discussions with all key stakeholders including local and international speakers. 

The Huddle Exchange Series

  • 947 Ride Joburg - Kids Races 2025
    947 Ride Joburg - Kids Races 2025
    Sat, 08 Nov
    Johannesburg
    Ride 97 km of traffic-free Joburg streets on your bicycle, using your mobility for the #1in15 South African affected by rare diseases. Saturday and Sunday 8-9 November 2025, FNB Stadium, Johannesburg.
  • 947 Ride Joburg - Mountain Bike Races 2025
    947 Ride Joburg - Mountain Bike Races 2025
    Sat, 08 Nov
    Johannesburg
    Ride 97 km of traffic-free Joburg streets on your bicycle, using your mobility for the #1in15 South African affected by rare diseases. Saturday and Sunday 8-9 November 2025, FNB Stadium, Johannesburg.
  • 947 Ride Joburg - Road Races 2025
    947 Ride Joburg - Road Races 2025
    Sun, 16 Nov
    Johannesburg
    Ride 97 km of traffic-free Joburg streets on your bicycle, using your mobility for the #1in15 South African affected by rare diseases. Sunday 16 November 2025, FNB Stadium, Johannesburg.
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Physical Address

The Station, 63 Peter Place, Bryanston, Sandton, 2021

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NPO: 120-991  NPC: 2016/071131/08  PBO: 930060119

© 2025  Rare Diseases South Africa NPC | Rights reserved

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Rare Diseases South Africa

NPO 120-991

The Station, 63 Peter Place, Bryanston, Sandton, 2021

(“the Organisation”)

 

MANUAL PREPARED IN ACCORDANCE WITH SECTION 51 OF THE PROMOTION OF ACCESS TO INFORMATION ACT NO. 2 OF 2000

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