To mark the occasion of Rare Disease Day 2019 the NGO Committee for Rare Diseases organised its second high-level event at the United...

Rare diseases are an area of healthcare which has been neglected in the past, predominantly due to the high cost of drug research and the...

If you inspire people, then they inspire other people and then it just keeps going on so that it just helps everybody. These are the...

Mc van der Merwe was born on 9 December 2014, after we had prayed for him for many years. He was such a beautiful baby boy, he did...

Rare Diseases South Africa (RDSA), in conjunction with the Genetic Alliance South Africa (GA-SA), are supporting those affected by rare...

There are aspects to working or running a charity that people do not realize. I would like to explain some of the things that we deal...

Mnqobi – “The one who conquers” We were blessed with two boys, born on the 1st September 2018. Our son Mnqobi, baby Q for short, was born...

About 7 years ago, I noticed a peculiar reaction when I had something to eat or drink. Human nature has it, we try and self-diagnose...

I can’t believe that this year is our 7th year doing this crazy race. Every year, we swear we will get fitter, earlier – we don’t. Every...

We know how difficult it is to attend patient meetings / workshops / conferences etc. Let’s be honest, we lucky if we make it to all our...