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American Retailer, Kohls, offers Adaptive Clothing Range for Kids & Young Adults
American retail giant, Kohls, recently announced a new line of adaptive clothing for children and young adults, through three of its...
Rare Diseases SA
Jun 14, 20192 min read
Webinar Wednesdays: 5 Reasons to Join
You may have seen our monthly Webinar Wednesday posts on various topics to do with rare diseases and issues affecting our rare community....
Rare Diseases SA
Jun 12, 20192 min read
How Artificial Intelligence (AI) is being used to detect Rare Diseases
Scientists have developed an artificial intelligence (AI) system that uses portrait photographs (facial analysis), in combination with...
Rare Diseases SA
Jun 10, 20191 min read
Prader-Willi Syndrome (PWS) Awareness day 31st of May: The first home for Adults with PWS
Prader-Willi Syndrome (PWS) is a rare genetic disorder caused as a result to damage on Chromosome 15. People with this condition have...
Rare Diseases SA
May 30, 20194 min read
Survivor Star Tackles Most Dangerous Peak for Dread Diseases
Nicole Capper has a number of titles to her name, including Mrs South Africa (2018), Functional Medicine pharmacist, model, MC and...
Rare Diseases SA
May 27, 20192 min read
Beautiful “Shanaya the First” gains her angel wings.
Little Shanaya Govender, or Shanaya the First as she affectionately called herself due to her love for Sophia the First and all things...
Rare Diseases SA
May 17, 20192 min read
6.9 million People worldwide have a bleeding disorder, 75 % of them do not know it!
WORLD HEMOPHILIA DAY 17th April 2019: “Reach OUT : The FIRST STEP to CARE” Lets Change the World for ONE PERSON at a time and help reduce...
Rare Diseases SA
Apr 17, 20193 min read
2019 DECLARATION OF CHILDREN’S RIGHT TO PALLIATIVE CARE
PatchSA are calling on all South African’s to sign the Declaration, to show support for the right of every child in South Africa to...
Rare Diseases SA
Apr 17, 20193 min read
HIGH LEVEL NATIONAL STAKEHOLDER MEETING FOR CHILDREN WITH SERIOUS ILLNESS
On 18 March, a high level national stakeholder meeting for children with serious illness took place in Johannesburg. Rare Diseases SA was...
Rare Diseases SA
Apr 9, 20192 min read
Rare Diseases SA champion private healthcare engagement to align with Universal Health Care
28th February 2019; Government’s National Health Insurance (NHI) scheme represents a substantial policy shift to restructure healthcare...
Rare Diseases SA
Mar 7, 20194 min read
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