Not Even FOP Could stop me. By Ciske Faber


I was born with malformed big toes. In 2011 I got admitted for a swollen neck muscle. I got diagnosed with type 1 diabetes and after several hospital admissions, tests, scans and a biopsy I got diagnosed with #FOP. #FibrodysplasiaOssificansProgressiva. All my muscles, tendons and ligaments are calsifying.

I lost mobility of my neck, both my arms, my back, right hip and right knee. I am studying towards my second degree at Nelson Mandela University and nothing will stand in my way to pursue my dreams. Rare disease day is important to me because we need to create awareness.All of us want to be

accepted by society and due to rare disease we struggle because our diagnosis have not been heard before.


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