South Africa’s GDP allocation to healthcare research is under 0.3% - a far cry from where it should be.

In September 2019, Member States of the United Nations, including South Africa, signed the most comprehensive and ambitious declaration...

"State of Emergency" is a permanent way of life for rare and chronically ill patients.

WHAT IS ADVOCACY? Whilst we are spending the month of Feb re-framing what the world thinks about Rare, we thought we spend just one day...

Rare Diseases South Africa (RDSA) has released the statement below in response to the signing of the Presidential Health Compact and in...

A 12-year-old American girl has come up with an ingenious product to ease the anxieties of paediatric patients just like her. Ella Casano...

If you or your company are looking for an initiative to support this Mandela Day (18 July 2019), then consider the Be Brave Box project...

My son Gidion was diagnosed with #FanconiAnemia (#FA) at birth, a very rare genetic disorder causing fatal bone marrow failure. He came...

On the 21st of January 2011, our beautiful little boy Connor was born. He was perfect in every way and had no issues what so ever. Connor...

I thought long and hard before I posted this, since I don’t want to offend anyone. I know in my heart everything said to me is said with...