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Dad turns Bed Sheets into Boardgames to Fight Boredom
No one will understand boredom more than a child hospitalised for extended periods of time. There are only so many movies to watch and...
Rare Diseases SA
Jul 14, 20191 min read
South African Breast Milk Reserve appeals for breastmilk donations
The South African Breastmilk Reserve is appealing to nursing mothers to donate breast milk. Executive director Stasha Jordan tells Joanne...
Rare Diseases SA
Jul 12, 20191 min read
Special Delivery: A Drone Just Flew a Kidney to a Transplant Patient
On the 19th of April, a custom-made drone lifted off from southwestern Baltimore in the USA and airlifted a human kidney to a nearby...
Rare Diseases SA
Jul 8, 20192 min read
New Fund to provide financial Support for Singaporean Rare Disease Patients
A new charity fund has been set up to help Singaporeans with rare diseases who cannot afford treatment. The Rare Disease Fun, established...
Rare Diseases SA
Jul 3, 20192 min read
Scientists Develop a “Universal” Blood Type
Sourcing matching blood types may soon be a thing of the past as scientists have developed a revolutionary technique for creating a...
Rare Diseases SA
Jun 14, 20192 min read
American Retailer, Kohls, offers Adaptive Clothing Range for Kids & Young Adults
American retail giant, Kohls, recently announced a new line of adaptive clothing for children and young adults, through three of its...
Rare Diseases SA
Jun 14, 20192 min read
Webinar Wednesdays: 5 Reasons to Join
You may have seen our monthly Webinar Wednesday posts on various topics to do with rare diseases and issues affecting our rare community....
Rare Diseases SA
Jun 12, 20192 min read
How Artificial Intelligence (AI) is being used to detect Rare Diseases
Scientists have developed an artificial intelligence (AI) system that uses portrait photographs (facial analysis), in combination with...
Rare Diseases SA
Jun 10, 20191 min read
Prader-Willi Syndrome (PWS) Awareness day 31st of May: The first home for Adults with PWS
Prader-Willi Syndrome (PWS) is a rare genetic disorder caused as a result to damage on Chromosome 15. People with this condition have...
Rare Diseases SA
May 30, 20194 min read
Survivor Star Tackles Most Dangerous Peak for Dread Diseases
Nicole Capper has a number of titles to her name, including Mrs South Africa (2018), Functional Medicine pharmacist, model, MC and...
Rare Diseases SA
May 27, 20192 min read
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