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Determined Tina, our MS Warrior
It is one of those days you never forget… Sunday 14th June 2005. I had flown back from JHB for work, and it was a chilly day. My husband...

Rare Diseases SA
May 30, 20224 min read


Raising Aidan Powered by The Hemp Cream
Authentic Parenting From Raising Aidan Microwave Cupcake Mix to The Hemp Cream, here’s an incredible story of a mother’s determination to...

Rare Diseases SA
Apr 4, 20224 min read


Bailey’s Surprisingly (Un)Normal Normal Journey
The new normal with Bailey and the fun we have as a family is no different to other families Our little Bailey came into the world on 7...

Rare Diseases SA
Apr 4, 20224 min read


Honouring Rare
Shining the light on the 1 in 15 people affected by rare diseases, including her own two rare warriors, Mrs. Isaacs tells her own...

Rare Diseases SA
Apr 4, 20223 min read


World Down Syndrome Day - 21st March #InclusionsMeans...
Including all individuals with intellectual disabilities! March 21st is World Down Syndrome Day (WDSD), this global awareness day has...

Hlumela Tshijila
Mar 2, 20222 min read


World Birth Defects Day
The 3rd March 2022 is World Birth Defects Day (WBDD) - a day when we recognise birth defects and their impact on the world. WBDD began as...

Hlumela Tshijila
Mar 1, 20224 min read


My life with Idiopathic Intracranial Hypertension
At only 18 years, in my matric year, I saw my dream of becoming a teacher slowly fading away - a dream I have had from a young age....

Nomsa Mtshali
Feb 16, 20224 min read


Shining the Light on Rare Diseases in South Africa
This year for World Rare Disease Day (WRDD) on the 28 February 2022, Rare Diseases South Africa (RDSA) is redefining what it means to be...

Hlumela Tshijila
Feb 16, 20224 min read


International Childhood Cancer Day (ICCD) – 15 February 2022
The 15th of February marks International Childhood Cancer Day (ICCD) and is used to continue to create a greater awareness and education...

Hlumela Tshijila
Feb 15, 20223 min read


RECOGNISING RARE DISEASES – ACCESS AND ACTION
Mobilising stakeholders towards the formulation and eventual adoption of effective rare disease policy to transform patients' lives. The...

Rare Diseases SA
Sep 7, 20215 min read
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