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CMS Member Awareness Survey 2023
The Council for Medical Schemes (CMS) is conducting a survey to assess member awareness. The survey questionnaire has been designed to...

Hlumela Tshijila
Mar 7, 20231 min read
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Another SA-first, as Vodacom launches a National Relay Service (NRS) to drive digital inclusion for
A milestone towards digital inclusion has been achieved as Vodacom announces another first in South Africa, with the launch of a...

Hlumela Tshijila
Nov 22, 20223 min read
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Patient Profiles: Wrongful Diagnosis
Having been misdiagnosed, I would have never imagined how life with Pompe would turn out. My name is Michelle Marais and I am a Pompe...

Rare Diseases SA
Oct 21, 20227 min read
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Dad Diaries: Life with A Rare Disease Is Anything but Normal
As a dad, it was my absolute honour and privilege to be able to give my daughter one of my kidneys on June 22, 2021. This was exactly...

Rare Diseases SA
Oct 21, 20224 min read
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Experimental cancer drug could be effective in treating idiopathic pulmonary fibrosis
Researchers have shown that the medication saracatinib shows promise as a treatment for idiopathic pulmonary fibrosis (IPF). Saracatinib...

Rare Diseases SA
Oct 17, 20222 min read
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IRDiRC Forms Regulatory Science Committee to Address Regulatory Challenges in Rare Disease Research
IRDiRC, a global collaborative initiative with the vision to enable all people living with a rare disease to receive an accurate...

Hlumela Tshijila
Sep 22, 20221 min read
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High Court Judgement in the Matter De Wet and RDSA vs MediHelp and CMS
The matter of Zachary de Wet was heard on Tuesday, 23 August, in an urgent application in the Pretoria High Court. The application made...

Rare Diseases SA
Aug 26, 20221 min read
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Health Squared: What Now?
Rare Diseases South Africa (RDSA) has been inundated with calls over the weekend from panicked members of Health Squared Medical Scheme...

Rare Diseases SA
Aug 22, 20223 min read
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MPS Warrior, Juan
Rare Warrior, Juan Venter was born on the 21st of April 2022 at 35 weeks. Juan was immediately placed in Neonatal ICU for 4 weeks while...

Rare Diseases SA
Aug 16, 20223 min read
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Tuesdays with Eden
After multiple doctors’ visits, an ultrasound finally confirmed what we already knew- something was wrong with our baby girl. Then came...

Rare Diseases SA
Jul 8, 20224 min read
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