Anyone else feel like we're in Lockdown limbo? Life feels the most "normal-ish" is has since the Covid-19 pandemic struck and yet we're...

The total economic burden for Rare Diseases in the United States of America for 2019 came to almost $1 Trillion! That is according to the...

It sounds a lot like a rare disease… but it’s neither a disease, nor is it rare. It’s an unfortunate mentality that exists surrounding...

“It doesn’t affect me, so I don’t have the capacity to deal with it right now” ~ All of us (at some point in our lives) We don’t believe...

If there is one thing people quickly learn about the Rare Diseases community, it's the resilience, tenacity and determination to make...

South Africa’s GDP allocation to healthcare research is under 0.3% - a far cry from where it should be.

In September 2019, Member States of the United Nations, including South Africa, signed the most comprehensive and ambitious declaration...

"State of Emergency" is a permanent way of life for rare and chronically ill patients.

WHAT IS ADVOCACY? Whilst we are spending the month of Feb re-framing what the world thinks about Rare, we thought we spend just one day...

Rare Diseases South Africa (RDSA) has released the statement below in response to the signing of the Presidential Health Compact and in...