Gold September is an annual campaign worldwide to raise awareness of childhood cancer. There are many advances in paediatric oncology,...

Symposium to address the way forward for rare diseases in South Africa The Rare Diseases Access Initiative (RDAI) in association with...

South Africa is currently the midst of an extraordinary time, with both logistics and access to healthcare services being severely...

We never plan to get sick… especially not with a rare condition or in need of a life-saving procedure that isn’t covered by medical aid,...

25 June is World Vitiligo Day. This rare, progressive, auto-immune condition can affect anyone, at any age and whilst research is continuing

Anyone else feel like we're in Lockdown limbo? Life feels the most "normal-ish" is has since the Covid-19 pandemic struck and yet we're...

The total economic burden for Rare Diseases in the United States of America for 2019 came to almost $1 Trillion! That is according to the...

It sounds a lot like a rare disease… but it’s neither a disease, nor is it rare. It’s an unfortunate mentality that exists surrounding...

“It doesn’t affect me, so I don’t have the capacity to deal with it right now” ~ All of us (at some point in our lives) We don’t believe...

If there is one thing people quickly learn about the Rare Diseases community, it's the resilience, tenacity and determination to make...