Rare Advocates Shine at the Rare Diamond Awards
The Rare Diamond Awards Gala Dinner took place on 15 September 2018 at the Indaba Hotel in Fourways. Created by Rare Diseases South...
Rare Advocates Shine at the Rare Diamond Awards
Megan is always in good spirits. Megan Fisher on #Syringomellia
She still manages to smile beyond all her challenges #aHUS
I am strong and will get through anything coming my way!!!
I am extremely grateful that he is able to live a normal live given all the circumstances-Hardus
They see a child who cannot speak, I see a miracle that does not need words. My Angel Gabriel
Never give up on your special miracle Ben-#SotosSyndrome
Smiling Fighter- Layla-Rose #CF
Phenyo is our Ray of Sunshine.
I am thankful for this journey #Goldenhar Syndrome