IRDiRC, a global collaborative initiative with the vision to enable all people living with a rare disease to receive an accurate...

The matter of Zachary de Wet was heard on Tuesday, 23 August, in an urgent application in the Pretoria High Court. The application made...

Rare Diseases South Africa (RDSA) has been inundated with calls over the weekend from panicked members of Health Squared Medical Scheme...

Rare Warrior, Juan Venter was born on the 21st of April 2022 at 35 weeks. Juan was immediately placed in Neonatal ICU for 4 weeks while...

After multiple doctors’ visits, an ultrasound finally confirmed what we already knew- something was wrong with our baby girl. Then came...

It is one of those days you never forget… Sunday 14th June 2005. I had flown back from JHB for work, and it was a chilly day. My husband...

Authentic Parenting From Raising Aidan Microwave Cupcake Mix to The Hemp Cream, here’s an incredible story of a mother’s determination to...

The new normal with Bailey and the fun we have as a family is no different to other families Our little Bailey came into the world on 7...

Shining the light on the 1 in 15 people affected by rare diseases, including her own two rare warriors, Mrs. Isaacs tells her own...

Including all individuals with intellectual disabilities! March 21st is World Down Syndrome Day (WDSD), this global awareness day has...