At only 18 years, in my matric year, I saw my dream of becoming a teacher slowly fading away - a dream I have had from a young age....

This year for World Rare Disease Day (WRDD) on the 28 February 2022, Rare Diseases South Africa (RDSA) is redefining what it means to be...

The 15th of February marks International Childhood Cancer Day (ICCD) and is used to continue to create a greater awareness and education...

Mobilising stakeholders towards the formulation and eventual adoption of effective rare disease policy to transform patients' lives. The...

Gold September is an annual campaign worldwide to raise awareness of childhood cancer. There are many advances in paediatric oncology,...

Symposium to address the way forward for rare diseases in South Africa The Rare Diseases Access Initiative (RDAI) in association with...

South Africa is currently the midst of an extraordinary time, with both logistics and access to healthcare services being severely...

We never plan to get sick… especially not with a rare condition or in need of a life-saving procedure that isn’t covered by medical aid,...

25 June is World Vitiligo Day. This rare, progressive, auto-immune condition can affect anyone, at any age and whilst research is continuing

Anyone else feel like we're in Lockdown limbo? Life feels the most "normal-ish" is has since the Covid-19 pandemic struck and yet we're...