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Building a Prioritisation Tool for South Africa: Why Patients Must Be at the Centre
Healthcare is changing. The future of medicine is no longer built only on broad planning for large populations. Increasingly, treatments...
Khanya Hlahatsi
Aug 28, 20253 min read
Riding for a Cause: When Life Throws a Curveball
Jacques de Wet Sometimes life throws a curveball you never saw coming. In those moments, you find people who will walk the path with...
Khanya Hlahatsi
Aug 19, 20252 min read
Be the sunshine in someone's storm
Have you ever heard a loved one or friend say, “I’m so tired. I’m flat broke. I can’t even afford to feed my kids”? For families caring...
Khanya Hlahatsi
Aug 11, 20251 min read
The Quiet Strength of Fathers: A Father’s Day Tribute from the Rare Disease Community
“A good father is one of the most unsung, unpraised, unnoticed, and yet one of the most valuable assets in our society.” – Billy Graham ...
Hlumela Tshijila
Jun 13, 20252 min read
A Father's Strength: A Tribute to My Dad this Father’s Day
When people ask me where my strength comes from, I often smile—because the truth is, it started with my dad. Image supplied by Kerry...
Hlumela Tshijila
Jun 8, 20251 min read
20 Years in the Dark: My Journey to an Ehlers-Danlos Syndrome Diagnosis
Supplied: Chloe Davies, Age 24 I was diagnosed with Ehlers-Danlos Syndrome (EDS) just last year — but my symptoms started when I was only...
Hlumela Tshijila
May 29, 20252 min read
Adoption of Resolution for Rare Diseases has been passed at WHA78 in Geneva
BREAKING NEWS FROM GENEVA! The Resolution on Rare Diseases has officially been adopted at the 78th World Health Assembly (WHA78)! This is...
Rare Diseases SA
May 24, 20251 min read
Unified Effort: South Africa's Commitment to Disability Inclusion
18 April 2025 - Johannesburg. Rare Diseases South Africa (RDSA) is excited to share some important updates regarding South Africa's...
Rare Diseases SA
Apr 18, 20253 min read
Running for Awareness, a Sister’s Fight Against a Rare and Painful Disease
Living with Epidermolysis Bullosa (EB) is a daily battle. Often referred to as “butterfly skin” disease , EB is a rare genetic disorder...
Rare Diseases SA
Apr 4, 20253 min read
Building an Inclusive Future: Human Rights Day and World Down Syndrome Day 2025
On Friday, 21 March 2025 , South Africa observes both Human Rights Day and World Down Syndrome Day (WDSD) —a meaningful intersection...
Rare Diseases SA
Mar 21, 20252 min read
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