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Rare-X in Review: Understanding the legal framework for the Rare Disease community in South Africa
RareX is a premier conference dedicated to the rare diseases community, bringing together a diverse group of healthcare professionals,...

Rare Diseases SA
Aug 18, 202411 min read


Request to Minister of Health regarding WHA Resolution on Rare Diseases
Rare Diseases South Africa NPC (RDSA) has issued correspondence to the Honourable Minister of Health, with regards to the WHA Resolution

Rare Diseases SA
Aug 8, 20243 min read


CMScript: Focus on Bipolar Disorder
Bipolar disorder affects approximately 45 million people worldwide and is the sixth leading cause of disability in the world. In South...

Hlumela Tshijila
Jun 20, 20242 min read


Get The Flu Vaccine Ahead Of The Influenza Season
As the seasons change, so does the risk of getting sick. With the influenza season on the horizon, it is time to think about protecting...

Hlumela Tshijila
May 22, 20243 min read


CMScript: Focus on Endometriosis
March is Endometriosis Awareness Month, a period dedicated to raising awareness about this complex medical condition that affects...

Hlumela Tshijila
Mar 18, 20242 min read


HELP RAISE AWARENESS FOR VASCULAR MALFORMATIONS!
Remei was born a year ago with what initially looked like what the paediatrician described as “severe port wine stains”. As the...

Hlumela Tshijila
Feb 23, 20241 min read
Circular 1 of 2024: Iron Deficiency Anaemia as a PMB condition
The Council for Medical Schemes (CMS) seeks to provide clarity regarding the funding of Iron Deficiency Anaemia as a Prescribed Minimum...

Hlumela Tshijila
Jan 24, 20242 min read


November Is Lung Cancer Awareness Month
Did you know that lung cancer is one of the most common types of cancer worldwide? It is also the leading cause of cancer-related deaths...

Hlumela Tshijila
Nov 8, 20231 min read


Celebrating Liesel…
Today is Phelan-McDermid day and we are celebrating Liesel . 5 year old Liesel was born in Pretoria, with Phelan-McDermid Syndrome, and...

Rare Diseases SA
Oct 13, 20232 min read


Switching and Monitoring Best Practice for Gaucher Disease
A consensus document Prepared by: International Working Group on Gaucher Disease (IWGGD) and International Gaucher Alliance (IGA) Issued...

Hlumela Tshijila
Oct 5, 20236 min read
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