World Down Syndrome Day - 21st March #InclusionsMeans...
Including all individuals with intellectual disabilities! March 21st is World Down Syndrome Day (WDSD), this global awareness day has...
top of page
blog
Search
Hlumela Tshijila
- Mar 1, 2022
- 4 min
World Birth Defects Day
The 3rd March 2022 is World Birth Defects Day (WBDD) - a day when we recognise birth defects and their impact on the world. WBDD began as...
71 views0 comments
Nomsa Mtshali
- Feb 16, 2022
- 4 min
My life with Idiopathic Intracranial Hypertension
At only 18 years, in my matric year, I saw my dream of becoming a teacher slowly fading away - a dream I have had from a young age....
240 views0 comments
Hlumela Tshijila
- Feb 16, 2022
- 4 min
Shining the Light on Rare Diseases in South Africa
This year for World Rare Disease Day (WRDD) on the 28 February 2022, Rare Diseases South Africa (RDSA) is redefining what it means to be...
140 views0 comments
Hlumela Tshijila
- Feb 15, 2022
- 3 min
International Childhood Cancer Day (ICCD) – 15 February 2022
The 15th of February marks International Childhood Cancer Day (ICCD) and is used to continue to create a greater awareness and education...
38 views0 comments
Rare Diseases SA
- Sep 7, 2021
- 5 min
RECOGNISING RARE DISEASES – ACCESS AND ACTION
Mobilising stakeholders towards the formulation and eventual adoption of effective rare disease policy to transform patients' lives. The...
572 views0 comments
Rare Diseases SA
- Sep 1, 2021
- 2 min
September Childhood Cancer Awareness Month
Gold September is an annual campaign worldwide to raise awareness of childhood cancer. There are many advances in paediatric oncology,...
79 views0 comments
Rare Diseases SA
- Aug 23, 2021
- 2 min
FOCUS ON IMPROVING QUALITY OF LIFE FOR THOSE IMPACTED BY RARE DISEASES
Symposium to address the way forward for rare diseases in South Africa The Rare Diseases Access Initiative (RDAI) in association with...
107 views0 comments
Rare Diseases SA
- Jul 14, 2021
- 3 min
Media Release: Availability of Medications / Panic-Buying
South Africa is currently the midst of an extraordinary time, with both logistics and access to healthcare services being severely...
364 views0 comments
Rare Diseases SA
- Jul 13, 2021
- 4 min
How to Fundraise Like Your Life Depends On It...
We never plan to get sick… especially not with a rare condition or in need of a life-saving procedure that isn’t covered by medical aid,...
106 views0 comments
bottom of page