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Dr. Helen Malherbe Steps Down as Director of Rare Diseases South Africa NPC
7 February 2025 - Johannesburg Rare Diseases South Africa NPC (RDSA) announces the departure of Dr Helen Malherbe from her role as a...
Rare Diseases SA
Feb 7, 20252 min read
Breaking Down Barriers: Creating a More Inclusive World for All
This opinion piece is informed by my personal experiences and poignant life story. My name is Ian Adams, and I have Retinitis Pigmentosa...
Hlumela Tshijila
Nov 13, 20245 min read
The Cost of a Life: A Family's Fight for Their Son's Future Amid Medical Scheme Dispute—Raising Awareness for SMA
Johannesburg, South Africa – August 2024 – Spinal Muscular Atrophy (SMA) is a rare and devastating genetic disorder that affects the...
Rare Diseases SA
Aug 29, 20245 min read
Great.com interviews Rare Diseases South Africa About Shinning Light on All Things Rare
Danielle Ribeiro from Great.com interviewed Rare Diseases South Africa (RDSA) as part of their 'Great.com Talks With...' podcast. This...
Hlumela Tshijila
Aug 27, 20243 min read
Update on the #FightForZach
It’s been 2 years since Rare Diseases South Africa (RDSA) launched a case in the Pretoria High Court on behalf of Zachary de Wet, at that...
Rare Diseases SA
Aug 27, 20244 min read
Rare-X in Review: Understanding the legal framework for the Rare Disease community in South Africa
RareX is a premier conference dedicated to the rare diseases community, bringing together a diverse group of healthcare professionals,...
Rare Diseases SA
Aug 18, 202411 min read
Request to Minister of Health regarding WHA Resolution on Rare Diseases
Rare Diseases South Africa NPC (RDSA) has issued correspondence to the Honourable Minister of Health, with regards to the WHA Resolution
Rare Diseases SA
Aug 8, 20243 min read
CMScript: Focus on Bipolar Disorder
Bipolar disorder affects approximately 45 million people worldwide and is the sixth leading cause of disability in the world. In South...
Hlumela Tshijila
Jun 20, 20242 min read
Get The Flu Vaccine Ahead Of The Influenza Season
As the seasons change, so does the risk of getting sick. With the influenza season on the horizon, it is time to think about protecting...
Hlumela Tshijila
May 22, 20243 min read
CMScript: Focus on Endometriosis
March is Endometriosis Awareness Month, a period dedicated to raising awareness about this complex medical condition that affects...
Hlumela Tshijila
Mar 18, 20242 min read
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