Request to Minister of Health regarding WHA Resolution on Rare Diseases
Rare Diseases South Africa NPC (RDSA) has issued correspondence to the Honourable Minister of Health, with regards to the WHA Resolution
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Rare Diseases SA
Sep 22, 20233 min read
Call on United Nations Member States to make Universal Health Coverage a Reality for Rare Diseases.
21 September 2023, New York – A high-level meeting at the United Nations Headquarters, UN Member States gathered to accelerate progress...
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Rare Diseases SA
Sep 19, 20234 min read
Orchard Therapeutics Announces Acceptance of Biologics License Application for OTL-200 in MLD.
Hope is on the horizon for patients impacted by metachromatic leukodystrophy.
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Rare Diseases SA
Aug 18, 20231 min read
RDAI - Advancing into Action
The Rare Disease Access Initiative (RDAI), a coalition of key stakeholders that includes participants from health industries and patient...
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Rare Diseases SA
Aug 18, 20231 min read
#FIGHTFORZACH
August marks exactly a year since Rare Diseases South Africa issued the following press release in respect of our #FigthForZach. Despite...
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Rare Diseases SA
Aug 18, 20231 min read
Introducing The South African Rare Diseases Access Initiative
This month our director of research and epidemiology, Dr Helen Malherbe, published yet another correspondence article in the South...
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Hlumela Tshijila
Nov 22, 20223 min read
Another SA-first, as Vodacom launches a National Relay Service (NRS) to drive digital inclusion for
A milestone towards digital inclusion has been achieved as Vodacom announces another first in South Africa, with the launch of a...
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Rare Diseases SA
Oct 21, 20227 min read
Patient Profiles: Wrongful Diagnosis
Having been misdiagnosed, I would have never imagined how life with Pompe would turn out. My name is Michelle Marais and I am a Pompe...
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Hlumela Tshijila
Mar 1, 20224 min read
World Birth Defects Day
The 3rd March 2022 is World Birth Defects Day (WBDD) - a day when we recognise birth defects and their impact on the world. WBDD began as...
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Rare Diseases SA
Aug 23, 20212 min read
FOCUS ON IMPROVING QUALITY OF LIFE FOR THOSE IMPACTED BY RARE DISEASES
Symposium to address the way forward for rare diseases in South Africa The Rare Diseases Access Initiative (RDAI) in association with...
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