Rare Diseases South Africa NPC (RDSA) has issued correspondence to the Honourable Minister of Health, with regards to the WHA Resolution

21 September 2023, New York – A high-level meeting at the United Nations Headquarters, UN Member States gathered to accelerate progress...

Hope is on the horizon for patients impacted by metachromatic leukodystrophy.

The Rare Disease Access Initiative (RDAI), a coalition of key stakeholders that includes participants from health industries and patient...

August marks exactly a year since Rare Diseases South Africa issued the following press release in respect of our #FigthForZach. Despite...

This month our director of research and epidemiology, Dr Helen Malherbe, published yet another correspondence article in the South...

A milestone towards digital inclusion has been achieved as Vodacom announces another first in South Africa, with the launch of a...

Having been misdiagnosed, I would have never imagined how life with Pompe would turn out. My name is Michelle Marais and I am a Pompe...

The 3rd March 2022 is World Birth Defects Day (WBDD) - a day when we recognise birth defects and their impact on the world. WBDD began as...

Symposium to address the way forward for rare diseases in South Africa The Rare Diseases Access Initiative (RDAI) in association with...