Riding for a Cause: When Life Throws a Curveball

Jacques de Wet

Sometimes life throws a curveball you never saw coming. In those moments, you find people who will walk the path with you—people who have dedicated their lives to fighting for others, asking for nothing in return. They are the counterbalance to the chaos that grips your mind and soul, bringing a kind of order to the new reality you find yourself in. These people are a godsend, and through their own pain, they have committed themselves to alleviating the greatest discomfort you will ever endure.

We've been fighting in counsel and High Court to get treatment for our son who has Hunter Syndrome (MPS II), and every step of the way, Rare Diseases South Africa (RDSA) has been there to support us and fight the fight with us. This is a small way that we can give back to those people who have never asked for anything in return.

Meet Jacques de Wet, a longtime Rare ACTIVist and a proud dad to Zach.

Jacques's journey into the world of rare diseases began when his son was diagnosed with Hunter Syndrome, a complex and progressive condition that affects the body’s ability to break down certain proteins. Over time, these proteins build up, impacting organs, bones, and joints. For years, Jacques has been a tireless advocate, raising awareness, fighting for access to treatment, and standing strong in the face of challenges. The medical costs are astronomical, and the de Wet family is currently preparing for a High Court case to challenge their medical aid and secure the care Zach needs.

Jacques is yet again taking on the Ride Joburg 947, pedalling with purpose as a proud #Ride4Rare team member. He's not just riding for his son, but for every family fighting a rare battle.

Let's ride with him. Let's ride for Zach. Let's ride for Rare.

Let's ride with him.

Let's ride for Zach.

Let's ride for Rare.

Register to #Ride4Rare here.