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Surrogacy journey with Pompe Disease

Writer's picture: Rare Diseases SARare Diseases SA


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In 2013 I was diagnosed with a rare Disease called Pompe Disease.

Luckily Pompe Disease is a PMB so my medical aid helps me to get the best treatment for this Disease.

This medication I receive every two weeks.  It cost my medical insurance R440 000 a month.  Our medical costs per month are very high.

I am a teacher for almost 10 years now and I love kids. We have talked about starting a family but this is not going to be an easy and cheap way.

Doctors don’t want me to get pregnant. For me to be able to carry a baby myself is not possible.  We decided to do surrogacy for us to have a baby of our own.

We as a couple know SURROGACY is very expensive but we believe we can reach our DREAM!

On the 3d of October we got our first appointment at Groote Schuur fertility.  No MEDICAL AID will pay for IVF and Surrogacy or Screening.  We have to do screening on our embryos to see which embryos are free from the Pompe gene.

I think to become a MOM and DAD is every couples dream.

Surrogacy is not well known in South Africa although overseas it is much more likely to heard about it.

THANK YOU FOR EVERYONE WHO ARE INTERESTED TO HELP US GETTING CLOSER TO OUR DREAM

A LITTLE, GOES A VERY LONG WAY **

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