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A tough battle with MG, But Megan has the most amazing smile ever! Myasthenia Gravis- Megan Hunter
My journey with #MyastheniaGravis Growing up I was a healthy, happy child. I never had any of the usual childhood ailments mumps, chicken...
Rare Diseases SA
Jul 3, 20187 min read
Despite not knowing what the future brings I choose to remain Positive Myasthenia Gravis-IIze Fourie
I was diagnosed with #Fibroelastosis of the heart when I was three days old. My parents lost their first child to the same disease a few...
Rare Diseases SA
Jul 3, 20182 min read
Never lose hope and always keep fighting. Life is beautiful! #Myasthenia Gravis-Retha de Wet
Hi! My name is Retha. I am a 24-year-old female diagnosed with Myasthenia Gravis. I’m also a speech, language and hearing therapy student...
Rare Diseases SA
Jun 28, 20182 min read
Never loose hope and keep fighting #Myasthenia Gravis- Dyanne Thomas
As part of #MyastheniaGravis Awareness Month I would like to share my story with you. It is long story, but I will do my best to...
Rare Diseases SA
Jun 28, 20183 min read
When I embarked upon this life journey, I was not prepared! #Myasthenia Gravis- Candice Mes
In 2006 I knew there was something wrong, but I didn’t know what it was. By the end of 2007, I was not coping and exhausted. My eyes were...
Rare Diseases SA
Jun 28, 20182 min read
I am thankful that Alf is stable Myasthenia Gravis – Alf Smulders
Living with Myasthenia Gravis in your Seventies As with Most People, Alf’s Road with MG spans many years before diagnosis and treatment....
Rare Diseases SA
Jun 28, 20184 min read
The Special Needs Journey is not one we planned to take..but we sure do love our tour guide-Emma
Our first child, a beautiful daughter, was born on 21 September 2003 –we named her Emma. She was perfect and life was good! On Christmas...
Rare Diseases SA
Jun 25, 20186 min read
The fighting spirit in Joshua is totaly remarkable #Hydrocephalus
Joshua was born premature at 33 weeks gestation 20 June 2016, his head circumference of 45cm was more then his length of 43cm to...
Rare Diseases SA
Jun 25, 20182 min read
A Path I Never Saw Coming – #Acromegaly
A new acromegaly infographic entitled, “A Day in My Shoes,” was released by Novartis this week. It was developed to help shed light on...
Rare Diseases SA
Jun 20, 20183 min read
Every cloud has a silver lining.-Kate’s Epilepsy Journey
When I was 12 years old, it was school holidays and so we had a few late nights and then a few friends came and stayed over for a sleep...
Rare Diseases SA
Jun 20, 20183 min read
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