Rare Diseases SAMar 22, 20184 minLearning from LukeLike every mother, I had dreams and aspirations for my unborn child. There was so much excitement about my first pregnancy. As I was...
Rare Diseases SAMar 22, 20183 minA Fabry InspirationI am now 46 years old. For 40 years I was healthy and I thought there was nothing wrong but on 16 September 2012, surprisingly I had a...
Rare Diseases SAMar 22, 20184 minWhat us “Rare” moms want other moms to know.A common theme which often arises when chatting with moms and caretakers of rare disease patients, particularly paediatric patients, is...