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Orange River Dash race review
By Cita Penn. The Orange River Dash took place on the weekend of 24 and 25 March after a long time of planning. We all arrived at...

Rare Diseases SA
Apr 5, 20182 min read


Our PawPanion
This is Peanut. He is a brown miniature poodle of only 2 years old. We got him when he was only 7 weeks old, dark brown and a little...

Rare Diseases SA
Apr 3, 20185 min read


My life is healthier for it
When I was 12 years old, it was school holidays and so we had a few late nights and then a few friends came and stayed over for a sleep...

Rare Diseases SA
Mar 26, 20183 min read


Cas is extremely destructive
Cassandra has a syndrome called #SmithLemliOpitz, and part of the syndrome is possible self-abuse. Cassandra has a very severe form of...

Rare Diseases SA
Mar 23, 20182 min read


Learning from Luke
Like every mother, I had dreams and aspirations for my unborn child. There was so much excitement about my first pregnancy. As I was...

Rare Diseases SA
Mar 22, 20184 min read


A Fabry Inspiration
I am now 46 years old. For 40 years I was healthy and I thought there was nothing wrong but on 16 September 2012, surprisingly I had a...

Rare Diseases SA
Mar 22, 20183 min read


What us “Rare” moms want other moms to know.
A common theme which often arises when chatting with moms and caretakers of rare disease patients, particularly paediatric patients, is...

Rare Diseases SA
Mar 22, 20184 min read
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