My Goal is to help raise awareness, Treatment, Diagnosis and the quality of patient life.-Corne Roux
blog
- Jun 11, 2018
- 3 min
I’m alone yet so proud!- Myasthenia Gravis By: Stephan Bernhardt
- Jun 11, 2018
- 2 min
Listening to your own body is the best approach- Myasthenia Gravis by Hein Moller
- Jun 7, 2018
- 2 min
Without my family I wouldn’t be able to smile- My life with Hidradenitis Suppurativa- Anthea T
- Jun 7, 2018
- 1 min
There is very little research done on HS. By: Tamara Wittstock
- Jun 7, 2018
- 2 min
If we stop who will try to fight for us My Journey with HS by:Zonika van der Merwe
- Jun 7, 2018
- 2 min
Bailey is truly a gem in our box of life’s jewels.- Bailey Kinsella with Chromosome Disorder
- Jun 5, 2018
- 2 min
I AM VERY SPECIAL-Arabella
- May 30, 2018
- 5 min
A genetic disorder that is often misdiagnosed – Joylene Cornelius
- May 30, 2018
- 8 min
I thought I was not going to make it – Carmen Crous
- May 30, 2018
- 3 min
She is Flourishing – #RareMum Tina Joubert’s story with CVID
- May 30, 2018
- 3 min
We appreciate every new moment of our lives – Cathy Clayton
- May 24, 2018
- 3 min
Coming to Terms with being a mom of a Special Needs Child – Prader-Willi Syndrome Awareness Mo
- May 24, 2018
- 3 min
Eary diagnosis would have a made a huge difference -Aiden Forbes #Prader-Willi Syndrome
- May 22, 2018
- 4 min
Working with a Rare Disease
- May 21, 2018
- 6 min
My marriage is stronger because of Jack’s condition#CPS By:Alison
- May 17, 2018
- 8 min
I know I am a warrior By Suze
- May 16, 2018
- 2 min
Being a mom to My Zebra Princess Angie’s Ehlers danlos hypermobility
- May 16, 2018
- 2 min
I am so proud of my son. Chrisjan
- May 15, 2018
- 2 min
What you see is what you get – an MPS story told by Mukateko Mahonisi