By Janco’s Mom Imagine starting the day as usual with a healthy, happy child in the home. You are going for a visit to the paediatrician...

My name is Khadeeja.. I am 21 years of age. The journey of life with a rare disease began for me in March 2016 when I was 19 years old....

It’s hard to believe that 2018 marks the seventh year that we’re participating in the Telkom 947 Cycle Challenge; and once again, we...

RareX 2018 brings together a broad range of South African, African and international rare diseases communities, under the conference...

Little Matthew has a disease with an enormous name: Mucopolysaccharidosis IV. MPS IV (or Morquio syndrome as it’s also known) is an...

Have you bought your ticket to the Rare Diamond Awards yet? At just R400 per person for dinner and a night of glitz, glamour,...

Riley was born on the 1st of November 2012. He was so precious. Riley sailed through his first weeks as a new born, he had a little...

Daniel was induced at 37 weeks and born with #NeonatalPneumonia and at 6 weeks started developing a rash on his neck which after numerous...

When Emily Bean was born in 2011, her parents were prepared (as much as they could be) for the fact that she had a #cleftlip and...

Meet our beautiful supergirl Shanaya the First who is currently battling Stage 4 #EwingSarcoma in her left humerus with #metastasis in...