Hanno was born on 15 February 2011. He weighed in at 3,001kg and everything was perfectly normal. The gynaecologist told us that...

My name is Kerry Walsh, I was born on the 22/10/1997. I was born in a set of #fraternaltwins. Around the age of one my parents had...

By: Liezel My name is Liezel, I am a 30-year-old female living with Crouzon’s Syndrome. Crouzon’s Syndrome is a rare autosomal dominant...

Iman Casoojee January 2010, a new year full of hope promise and prosperity for South Africa. But a time bomb had been placed on my child....

By Arushi Nundkissoor Our greatest blessing. On the 25th of July 2016 we were blessed with our precious baby girl Arushi. She came into...

By Janco’s Mom Imagine starting the day as usual with a healthy, happy child in the home. You are going for a visit to the paediatrician...

My name is Khadeeja.. I am 21 years of age. The journey of life with a rare disease began for me in March 2016 when I was 19 years old....

Riley was born on the 1st of November 2012. He was so precious. Riley sailed through his first weeks as a new born, he had a little...

Daniel was induced at 37 weeks and born with #NeonatalPneumonia and at 6 weeks started developing a rash on his neck which after numerous...

When Emily Bean was born in 2011, her parents were prepared (as much as they could be) for the fact that she had a #cleftlip and...

Meet our beautiful supergirl Shanaya the First who is currently battling Stage 4 #EwingSarcoma in her left humerus with #metastasis in...

My journey with #MyastheniaGravis Growing up I was a healthy, happy child. I never had any of the usual childhood ailments mumps, chicken...

I was diagnosed with #Fibroelastosis of the heart when I was three days old. My parents lost their first child to the same disease a few...

Hi! My name is Retha. I am a 24-year-old female diagnosed with Myasthenia Gravis. I’m also a speech, language and hearing therapy student...

As part of #MyastheniaGravis Awareness Month I would like to share my story with you. It is long story, but I will do my best to...

In 2006 I knew there was something wrong, but I didn’t know what it was. By the end of 2007, I was not coping and exhausted. My eyes were...

Living with Myasthenia Gravis in your Seventies As with Most People, Alf’s Road with MG spans many years before diagnosis and treatment....

Our first child, a beautiful daughter, was born on 21 September 2003 –we named her Emma. She was perfect and life was good! On Christmas...

Joshua was born premature at 33 weeks gestation 20 June 2016, his head circumference of 45cm was more then his length of 43cm to...

A new acromegaly infographic entitled, “A Day in My Shoes,” was released by Novartis this week. It was developed to help shed light on...