My Journey to discovering #Sjogrens By Bianca Dessington
It started with my eyes burning for a couple of days almost excruciatingly. I realized something was wrong when my eyes weren’t making...
My Journey to discovering #Sjogrens By Bianca Dessington
Listen to your Body #CushingDisease By Hettie Smith
#Cushing By Kristi Kirstein
Beandri’s Progeria Journey by Beandri’s Mom
My Journey With Pompe by Jean Mari
130 Days in ICU #PompeDisease
Our PawPanion
My life is healthier for it
Cas is extremely destructive
Learning from Luke
A Fabry Inspiration
What us “Rare” moms want other moms to know.