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Jayden had Angels and his now an Angel- Migrating Partial Epilepsy
Jayden Thorn was born the 18th July 2010 at 12:56 a perfectly healthy boy with good apgar scores ( scoring done on new born’s to ensure...
Rare Diseases SA
Jun 20, 20182 min read
My EDS Journey by Yolanda Smith
It was a sunny Thursday morning the 21st of May 2009. I had my singing lesson planned for 8am. But my singing teacher realized within...
Rare Diseases SA
Jun 11, 20184 min read
My Goal is to help raise awareness, Treatment, Diagnosis and the quality of patient life.-Corne Roux
Dear Reader I am 31 years old and have had 38 operations to date due to my condition or the side effects of either the condition, or the...
Rare Diseases SA
Jun 11, 20182 min read
I’m alone yet so proud!- Myasthenia Gravis By: Stephan Bernhardt
Hi there. My name is Stephen Bernhardt. Born on December the 16th 1981(36). I was diagnosed with Myasthenia Gravis age 14. Surgery was...
Rare Diseases SA
Jun 11, 20183 min read
Listening to your own body is the best approach- Myasthenia Gravis by Hein Moller
Starting a new life with #MyastheniaGravis Since the middle of 2017 I had begun to notice on photographs that my right eye was droopy....
Rare Diseases SA
Jun 11, 20182 min read
Without my family I wouldn’t be able to smile- My life with Hidradenitis Suppurativa- Anthea T
I’m 41 yr old and been living with incurable, painful autoimmune skin condition called #Hidradenitissuppurativa. I was clinically...
Rare Diseases SA
Jun 7, 20182 min read
There is very little research done on HS. By: Tamara Wittstock
I was officially diagnosed with #HidradenitisSuppurativa also known as HS 4 years ago and recently my son Aiden started to develop the...
Rare Diseases SA
Jun 7, 20181 min read
If we stop who will try to fight for us My Journey with HS by:Zonika van der Merwe
This is a very embarrassing situation to be in, struggling with #Hidradenitis Suppurativa it’s a large impact on a everyday basis and...
Rare Diseases SA
Jun 7, 20182 min read
Bailey is truly a gem in our box of life’s jewels.- Bailey Kinsella with Chromosome Disorder
Our daughter Bailey was diagnosed with a Rare #ChromosomeDisorder, she has additional Chromosome material on Chromosome 15. She is...
Rare Diseases SA
Jun 7, 20182 min read
I AM VERY SPECIAL-Arabella
My name is Arabella, I was born on 12 January 2017 and this is (just the beginning) of my story.I have a genetic disorder called...
Rare Diseases SA
Jun 5, 20182 min read
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